Thursday, June 20, 2019

June is Lipedema Awareness Month - Fight For Your Mobility

June is Lipedema Awareness Month and I created the Lipedema Triathlon four years ago to help spread awareness and to remind us to keep fighting for our mobility.

Next Saturday (June 29) @srymca is once again hosting us locally, but it is also a virtual race, you can do in your own hometown!

And this year @juzocompression is sponsoring us! We even got official race shirts!

Sign up here: https://www.signupgenius.com/go/5080448abad2fa57-lipedema3

#lipedemafitness #srymca #juzocompression #lipedematriathlon #wearestrongertogether #lipedema


Wednesday, June 19, 2019

June is Lipedema Awareness Month - More than a Diagnosis

An important thing to remember: while we may have been diagnosed with Lipedema, we are so much more than our diagnosis.

The ongoing maintenance of our progressive condition can be overwhelming, so remember to still take time to do the things you love.

I love art, and for a long time I forgot that. I was so immersed in my own self care that I forgot what a wonderful gift making art is.

Make time to do what you love, to spend time with those you live, and to keep on living your life to the fullest.



Tuesday, June 18, 2019

June is Lipedema Awareness Month - Kinesiology Tape

There is currently no cure for Lipedema. It is a progressive condition, and requires lifelong management.

Complete Decongestive Therapy (CDT) is a key element in the management of Lipedema, and Kinesiology (or Kinesio) Tape is a great tool to assist with that care.

There are many brands on the market, the one shown is Juzo Therapy Tape. It is an elastic, 100% cotton, tape that simulates the elasticity of human muscle. Thank you Juzo!

The theory is that the tape mimics MLD (manual lymphatic drainage), lifting the skin as you move to open up the lymph system. It can also be used to support injuries, muscles and tendons, etc. (professional athletes have been using the tape for years). And it speeds recovery.


Monday, June 17, 2019

June is Lipedema Awareness Month - CBD

I learn new things every day, a fellow Lipedema lady talked about CBD oil and creams, I picked this up off amazon to give it a try. It is Hemp, not CBD, but had great reviews, so here goes. 

I do lots of daily care, vibration, dry brushing, MLD, exercise, and sometimes my ligaments get easily twisted and it can add to my pain, I’m hoping this does the trick.

What do you use for painful swollen Lipedema legs?



Sunday, June 16, 2019

June is Lipedema Awareness Month - Spread the Word

Saturday WOD in the Park, warmup (3 rounds of 10 each: sit-ups, pushups, pull-ups, squats, Samson stretch, and good mornings) followed by some Frisbee throws and a one mile walk.

Getting ready for the 4th Annual Lipedema Triathlon (June 29) and feeling so supported, not only by my Juzo dynamic graduated compression, but also because Juzo is sponsoring our Lipedema Triathlon! Such a wonderful company, thank you @Juzocompression.

#ILoveCrossFit
#CrossFitSavedMyLife


Saturday, June 15, 2019

June is Lipedema Awareness Month - Progressive & No Cure


People with Lipedema are constantly managing their symptoms, and it gets overwhelming some days. 

Manual Lymphatic Drainage (MLD), dry brushing, vibration, rebounding, bandaging, compression, supplements, elevation, nutrition, and fitness.

Not to mention the toxins in our bodies, that our compromised lymphatic system cannot effectively eliminate, which causes us to feel run down before we begin to even attempt to manage our condition.

Christine Miserandino wrote a blog post (https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory), where she explains her spoon theory, and it is a great way to explain what it is like to live with Lipedema and other chronic, progressive, and debilitating conditions.


Friday, June 14, 2019

June is Lipedema Awareness Month - Rebounding

Staying active is critical to keeping your mobility with Lipedema, and rebounding is one of the best ways to do so.

It is a weight-bearing exercise that is easy on your joints, really gets your lymphatics pumping, improves your balance, and it is loads of fun!

Weight limits vary on each model, so check the specs. I use the one pictured, it is the Rebound-air Ultimate (it folds up, and comes with a case, and an airport dolly). The weight limit for it is 400lbs. I purchased it years ago, when it was the only one I could find with an upper weight limit. 

You can purchase an additional stabilizing bar, which I highly recommend if you are just starting out, or balance is an issue. We set mine up in the basement and my husband installed hand straps in the rafters above me, which also works well, and adds another dimension to your workout.