Wednesday, November 27, 2019

We Have Come Full Circle

It is hard to believe that six years ago those newly diagnosed with Lipedema were being advised to NOT exercise, as doctors thought it would make our symptoms worse.

Six years later and new members of the Lipedema Fitness Facebook support group are telling us their doctors recommended they join our group!

That is huge progress! We are changing how Lipedema is treated!


Keep fighting for your mobility, keep spreading awareness, and keep being awesome! We are stronger together and we are changing how Lipedema is treated and hopefully we learn even more next year and get to some real answers and one day maybe even a cure!

Tuesday, November 12, 2019

Snow, Sleet, and Slush - Oh My! (Finding Footwear for Lipedema Legs)

Today was 28 degrees in lovely upstate NY, and it brought with it snow, and freezing rain. Schools had a two hour delay, and it took me about as long to scrape my car windows before venturing out into the winter wonderland.

Don't get me wrong, I absolutely love winter. I marvel at the grace falling gently all around me, covering everything the eye can see, and making it look like a fairy tale. At 50, I still find snow absolutely magical.

What is not magical is trying to find footwear for the winter.

Lipedema tissue at my stage 3 (also known as Lipolymphedema) begins at my ankles (typically called an ankle cuff), and it can be very painful to the touch, so footwear has to stay below that area.

In the past I have opted for Lands' End or LL Bean style slip on mocs, but this year in my search I came across multiple articles about winter running shoes.

Here is a recent article from Runner's World that includes their editor's top picks. But it also mentions that some brands will offer a GTX version of their top shoes (GTX = GoreTex).

So maybe just try your favorite sneaker and see if it comes in a GTX model. Check some options in this article by Solereview.

I think I might be checking out one of my favorites (Asics) and their Gel-Sonoma 4 GTX...

Asics Gel-Sonoma 4 GTX

Some other options are adding things to your existing shoes, like ice/snow cleats or galoshes.