Most of us living with Lipedema have tried many things over the years in search of some relief in the heaviness and the pain we experience, and to help combat the loss of our mobility.
We have come to learn that while we share in having Lipedema, we can be very different in how we present, in how we progress, and even in how we respond to treatments, exercise, supplements, etc.
What we do know is that Lipedema tissue is unlike regular fat. It does not respond to things in the same manner. Which is why I was very interested in what some Lipedema patients taking the GLP-1 meds were sharing about their experiences...
1. Experience an almost overnight reduction of pain - ex. going from using daily pain meds to not needing any at all!
2. After a couple years into using the GLP-1 meds, they can no longer feel the Lipedema nodules (not saying they have dissolved, but definitely sounds like possibly shrinking to the point of no longer feeling them).
I feel the medications must have an anti-inflammatory component with the rapid relief they are feeling, and maybe an anti-fibrotic component, which I have read some medical studies (outside of Lipedema) saying the same about them.
As someone with late stage Lipedema, the top two things I deal with are #inflammation and #fibrotic tissue. They are what cause me pain and limit my range of motion and cause loss of mobility.
These two factors alone have me interested in these medications, and I would love to hear more about what others are experiencing.
Are you a Lipedema patient taking one of the GLP-1 medications? We would love to hear about your experience.
We need research and data. And we need people to share their experience, maybe in an anonymous manner; because from what I am seeing, is this could be huge help in late stage Lipedema treatments, when most who are in this stage, are typically told there is nothing we can do for you.