Friday, May 13, 2022

IN MAY WE WEAR STRIPES


May is EDS (ehlers-danlos syndrome) awareness month. I have hyper mobile EDS or hEDS. It is a connective tissue disorder that for me = easily dislocated joints. I have to be extra mindful in how I move, especially during training. 

The zebra is the symbol for the Ehlers-Danlos Society. Why? Because in the 1940s a doctor coined the term “if you hear hoofbeats, think horses, not zebras” when teaching new students. Meaning don’t look for the rare diagnosis.

Great when teaching, not great when you actually have a rare disease. So I love how they claimed the zebra and wearing your stripes in May to help spread awareness!  I love clever ♥️🦓

hEDS is a common comorbidity of Lipedema, so it is far from rare to a lot of us.

Thursday, May 12, 2022

7th Annual Lipedema Triathlon - June 25, 2022

It is OFFICIAL!!!

JUNE 25 is the 7th Annual Lipedema Triathlon!

Locally being hosted by the Saratoga Regional YMCA - thank you!

But this is a virtual event and you can participate from anywhere! Ask the YMCA in your area if you can do it there, at your local pool, or even in your own backyard.

This event was created in an effort to spread awareness for Lipedema, and the importance to keep moving and challenging ourselves.

It is all-inclusive, meaning you can choose your level of involvement (do one lap, one mile, one leg of the race, or the full TRI, whatever your fitness level).

Triathlon races vary in distance, the one we are focusing on is the Sprint: 
  • 750-meter (0.47-mile) swim
  • 20-kilometer (12.4-mile) bike
  • 5-kilometer (3.1-mile) run/walk

Thank you to our Sponsors this year: The Saratoga Regional YMCA, Juzo Compression, and Lympha Press. Juzo and Lympha Press sponsored the official Race T-shirts / Water Bottles for the first 50 registered participants! Once all the orders are placed, we will see how much funds we have left for the next round and will be contacted in the order of registration signup, so don't miss out...

The current round of signups can be done here (please use a reliable email so we can contact you if funds are available for more shirts/water bottles:

Here are some of the 2021 Lipedema Triathlon Finishers! It is an international event, with participants from all over the world! Such a great way to spread awareness of Lipedema, and the importance of staying active!