One Body, One Life

Can you imagine the care you would take of your vehicle, if you only got one in your lifetime?

Photo by Casey Etter-Bobb #badnova 

Take a moment to really think about that, what would you do if you just got one vehicle? What would you pick as that vehicle? Something fast and fun? Something comfortable? Something that could transition through your stages of life?

We each have different attachments to our vehicles, some use them for transportation, some for fun, some even for show, like the picture above from our good friends Thomas Bobb and Casey Etter-Bobb, they were the first place I thought to seek out a photo to illustrate an amazingly well taken care of vehicle. 

The point being, that we take great care of our vehicles now, even when we trade them in every few years, and our bodies deserve at least the same level of care.

You are worth the best attention, the best love,

the best of everything you can muster!

I know some days it can seem overwhelming with the amount of time, care, and attention we put into living with Lipedema, and feeling overwhelmed is when our emotional side needs the most love. But taking the best possible care of our bodies is not just good advice for those of us with Lipedema, it is good advice for every BODY.

Keep up the good fight my friends, you are doing things now that you will continue to see the benefits of for many many years down the road. We don't get to trade our chassis in, we only get the one.

Spartan Slosh Pipe Challenge - Killington, VT

This past month (September) found me in the cheerleader role, as most of my training mates, my coach/hubby and even my daughter were signed up for the Spartan Race at Killington Mountain in VT.

The atmosphere was electric, with music pumping as the energy, nerves, and excitement filled the air. 

Parking was done well, we were close enough to walk in from the lot, but they also had shuttle buses running from the lots to the event if you were short on time or energy. 

Getting checked in takes time (the arrival suggestion they give of 1 - 1 1/2 hours early is a good one), once done we headed to bag check and then to the Starting Line (daughter's heat was at 10:00am, and everyone else at 10:15am).

It was my daughter's first Spartan Race, and she rocked it!

The only downside was the kids were coming in so fast that I missed my husband's take off. But mommy duty called, I had to get over and snap a few pictures of my girl kicking butt.

After she finished, she was hungry, so off to the lodge we went (one of my training mates and the wife/mother of a couple racers was hanging out with us). Lodge food is pricey, bring your wallets, but they do accept credit cards. 

Refueled and seeing a bunch of fun activities setup outside, off we went to check out the trampolines for her, and the Spartan Challenges for us...

The Spartan Challenges are timed events for those in waiting mode (finished racers, pending racers, or spectators like us). The one that caught my eye was the Slosh Pipe, which is a PVC pipe (I think the ladies pipe was 8 feet long, 3" wide and filled 60% full with what I assume is a couple gallons or so of water). 

The pipe is deceiving, as it doesn't weigh much (estimate about 20 or 30lbs), but the water "sloshing" from side to side, and the length of it really throws you off balance, and changes the weight you are pressing.

They gave us a chance to get a feel for it, and then you put your hands on the tape (cannot leave the tape) and ready, set, go - the timer is started and you have to get it up and do as many presses as possible in 60 seconds.

While my friend decided if she could do the challenge (her shoulder is injured), another woman came up to get a feel for it. She had great training and determination, really good form, but you could see the balance portion of the challenge got her attention. After several minutes of trying, she asked if I was ready to go, and just like that, my challenge was on.

We have been working our squats, so I was able to get low, and surprised myself when I got it into rack position pretty quickly, then I began to do my presses. You would get a couple in and the balance would go wonky, and you would need to get it stable again. I was able to get 25 presses in before time was called.

I was pleased with my performance, and stayed to watch a couple others go for it, before heading to the finish line and awaiting our friends/family to come in.  

As we were just about to leave, the woman practicing before me went. She struggled a little getting the pipe into rack position, which really ate up the time, but she was still able to get a good amount of reps in.  When she finished, she walked off the platform and gave me a high five. It was so nice to feel equal with athletes on the mountain.

That is one of the best parts of my training, feeling connected with real athletes, and seeing myself as their equal is slowly taking place within me, too. My husband pointed out that athletes are the last ones to judge, they know the work that goes into it, they respect the work and those doing it.

Fight on warriors, being larger doesn't mean we are not fit, or unable to compete and even win sometimes, too.

I say win, because I was told I had a real shot at winning the Spartan Slosh Pipe Challenge! The man running the challenge came up to me and asked to verify my email before we left. At the time the closest person to me had 15 presses to my 25. I cannot tell you the confidence builder that moment was. Win or lose, I felt amazing!

Huge congratulations to my husband, daughter and all my training mates - you guys killed it! Now off to the hardware store for slosh pipe making materials!

(Update: I did not receive the winning email from Spartan, so congratulations to the winner, I only wish I knew how many she beat me by so I could make sure next time I give her a better run for her money! Spartan HQ said they don't post the results, and they don't know the winning number of presses, the rep in Killington just sends the names and emails to HQ so they can send out the winning email - AND you get a free entrance into another race, how cool, so get yourself to Lowes/Home Depot and make a slosh pipe - so much fun, and great training, just maybe use antifreeze if like me you live in cooler climates.)

New Goal - Time to try the High Peaks!

One of my friends (Colleen) who helped me to achieve my last goal (finishing the Survive the Farm 5K obstacle and mud run in May) is a runner and in the past couple years started making her way up the High Peaks of the Adirondacks.  There are 46 High Peaks, and they call you a 46er if you hike all of them.

Colleen's last adventure brought her up to her 15th High Peak!  How cool is that?  In my book it is pretty cool.  Her facebook post and pictures of her last hike inspired my next goal - to begin the climb.

Colleen on the summit of Upper Wolfjaw (#11 for her) in 2014

I talked to coach/hubby who said we should wait till the fall, as the heat really is a challenge all it's own in the summer months for me.  Wearing a couple layers of compression from foot to chest doesn't make that any easier.  So we have set our sites on this fall.

Part of me immediately remembered the hilly bits of the mud run and how challenging it was, and this is going to be a hike up a mountain (literally a mountain - I'm not making a mountain out of a mole hill, it is literally a mountain), I must be crazy.

Colleen's 1st peak -  8/15/2010

Coach picked Cascade Mountain (in Lake Placid, NY) as our first, and come to find out it is the first for many (according to wikipedia, Lon Pierce was the very first to make that hike up in 1872).  Not the shortest, but reportedly the easiest.  Ranked 36th in elevation, coming in at 4098 feet, and will be a 2.4 mile hike up.  Wish me luck, and thank you Colleen for the inspiration and photos below.  Turns out Cascade was Colleen's first, too, back in August of 2010...

High Peaks Wilderness Area Details

Colleen going up Cascade

Cascade Summit Marker - Woo Hoo, she did it!

Colleen's view from the top of Cascade

What goes up, must go down.

Gratitude - June is Lipedema Awareness Month

I'm not sure if you know, but 3+ years ago I could barely stand, let alone walk, and as I sit here typing I have 11,468 steps registered on my fitbit.

I have primary Lipedema, and secondary Lymphedema (because it took so long to get diagnosed). Most doctors have no idea what it is, let alone how to diagnose or treat it. There really is limited treatment, and there is currently no cure.

3+ years ago I started a new job at the Temple, one I was not sure I could keep because of the walking involved to get to/from work and the huge flight of stairs to get to/from my office.

My loving husband and soon to be coach began working with me in CrossFit (he is a certified CF instructor and amazeballs at modifications). He had been training others for years, and 3+ years ago it was my turn to be added to the team. We switched eating style to the Zone at that time as well, but we don't consider it a diet, it was/is a change of eating style.

We stopped soda and as much processed food as we can, but we still live. We still share in celebratory cake from time to time, and even have pizza after every 5K we finish.

I have grown stronger and stronger over the past couple years, and I am forever grateful to my coach/hubby and my training mates. You know who you are, and I love you deeply.

Survive the Farm 2015 (Obstacle/Mud 5K)
Couldn't have "survived" it without these guys!

Today after our workout I wanted to mow the lawn, and began on the side yard. headphones on, I am sure I was a sight to those drivers passing by. After the side yard, i moved on to the front yard - more performance of singing and dancing while I mowed. I had a ball! I love mowing so much, and it is a great workout, too.

I started to cry towards the end of the lawn. I felt so good, so blessed, so grateful, and I recalled the beginning of my journey back to regaining my mobility. I looked at the driveway, maybe 50 feet, and I recalled those brutal first steps into my training, and here I was 11K plus more steps and I still felt amazing.

June is Lipedema Awareness month. I am sharing here because I want to thank those who mean so much to where I am now, and to spread awareness, so if there is someone out there in a similar situation, feeling their own mortality, please know that little steps do add up. You are not alone.

JUNE IS LIPEDEMA AWARENESS MONTH - Give Yourself a Challenge

It is what we do, right?  We give ourselves challenges.

Sometimes others give us challenges, but either way accepting and then crushing a challenge feels A-M-A-Z-I-N-G!

It doesn't matter if it is a mental or a physical challenge, both, or something entirely different, but the act of working towards a challenge (or goal) and accomplishing it is a sure way to make you feel alive.

I've taken to posting my personal challenges on facebook, I don't know if I'm looking for someone to say I'm nuts and talk me out of it, or to cheer me on in the hope it lifts me up when I think I'm nuts for attempting it; but either way the act of posting it out in the open for all the world to see ensures one thing, I will fight like the dickens to crush that goal. (Thank you Mr. Shakespeare for that wonderful expression, "like the dickens")

Fighting for my fitness has become a lifestyle.  You see Lipedema has a way of making you feel weak, both mentally and physically, and it can also make you feel like a victim. Like there is nothing you can do about your condition, that your body will eventually break down completely and you will be trapped inside of it like a prisoner on death row. That sounds dramatic, but trust me when I say IT IS REAL.

Fighting back in whatever way I can is the only way I have found to take my life back.  I am living with Lipedema, I am not dying from it.

Training on the Ropes Challenge Course at Ndakinna

So here is my challenge for you - spread awareness about Lipedema.  Tell anyone and everyone who will listen, find creative ways to do so - there are some great videos on youtube, created by wonderful people all over the world, like the one below from Sherry Simoes (Lipedema Network Canada).

The more we spread awareness, the more lives we touch, the more we learn, the more we grow and the closer our chances of finding other life changing things we can do for those of us living with Lipedema.

Bear of a WOD

Saturday WOD (workout of the day) - (20) slam ball with 20lb medicine ball, bear crawl across the dojo, (20) American kettle bell swings with 25lb KB, repeat for 12 minutes. I got as far as finishing the bear crawl into the 4th round (so 80 slam balls, 7 bear crawls, and 60 KB swings).

It was brutal. After the first round coach/hubby alerted everyone that 3 minutes had passed. 3 MINUTES - what the what??? We were all dying, and breathing was hard and fast; head down and I just focused on each movement as I was in it, keeping form as good as i could, and before I knew it we had 40 seconds left. As my hand crossed the finish line on the last dojo bear crawl, and coach called time, I slumped down to the floor. Not sure if it was a good position or not, thinking I could probably breath better if I stood up, but not being able to move for a few moments.

Slowly I turned over and sat up, a teammate brought me my water bottle (she is such a good partner), and slowly the breath settled, and the heart rate came back to normal. Small discussions, and some of them began handstand walking (impressive to behold); I could not move, and I was OK with that. I just put in 15 minutes of warm up and 12 minutes of actual WOD and I felt good - NO, I FELT GREAT!!!

I knew I had just done a really hard workout for me. I was proud as hell I made 7 trips across the dojo on my hands and feet (coach is trying to prepare me for the survive the farm race so lots of bear crawls in my future).

I sat talking to another teammate, as she asked if coach liked thinking up various tortures for us, and I started breaking down what he actually does... he looks at his trainees (he calls us athletes) and knows what is hurting them (shoulder, knee, etc.), what they are training for (half marathon, spartan race, survive the farm, being able to get up off the floor, etc.) and he modifies and creates workouts that push us, that challenge us, that make us see incredible results when compared week to week, month to month and year to year.

i am blessed to have this coach also as my hubby, truly blessed. I pray that all of you can find a coach with similar ability, because it truly makes a huge difference in what you think you can do, and what you can actually do. We can do it. It doesn't matter what our size is, what our mobility is, we can find ways to use our bodies to move our bodies.

Sorry, very long post, time for a nap smile emoticon - happy Saturday!

(taken from our Lipedema Fitness Facebook Posts)

"Move into your life (Making Exercise Work For You)" - 2014 FDRS Conference Presentation

In September 2014, my coach/hubby and I were honored to not only attend our first Lipedema Conference, but to also be there as presenters, and share our story of how fitness has given me back my mobility and the ability to Live with Lipedema.


Here is the video of that presentation, as found on Youtube, as are all the presenters.  I highly recommend you find the Fat Disorders Research Society 501c3 channel at Youtube and watch them all.


FDRS put on an amazing conference and it was very wonderful (and emotional) to be in a room full of 100+ other women just like me, living with Lipedema.


The video is about 24 minutes long, the opening is a warm-up led by my amazing husband Bob, which is typical before all our workouts, to ensure joints are loose and ready to be worked, and then I take over the mic for some info on how my life has changed since my diagnosis...